No data about me, without me.
Andrea Downing, Founder, Brave Bosom
Imagine what would happen if you knew you had a very high chance of developing cancer at a young age. What would you do about it? How would you feel about it?
When I was 25 years old, my genetic counselor explained to me that I had up to an 87% lifetime risk of developing breast cancer, and up to 60% lifetime risk of ovarian cancer. I had tested positive for a BRCA1 deleterious gene mutation. I belong to a growing number of people “Previvors.” Read more on Andrea’s story.
The Science of Storytelling.
Carl Zimmer, Columnist, New York Times
Every day, it seems, scientists are discovering something new about how life works. But as our understanding grows, it gets more challenging to tell the stories of science. We have to push past the jargon and get to the heart of the narrative. Read more on Carl’s story.
The vanguard of genomic medicine
Diana Bianchi, Natalie V. Zucker Professor of Pediatrics, Obstetrics and Gynecology
Approximately 90% of women will become pregnant at some point in their lifetime. A need for more accurate prenatal screening, a test that works well, and multiple commercial enterprises dedicated to getting the testing integrated into clinical care have combined to make prenatal DNA analysis the most widely used application in genomic medicine today. Read more on Diana’s story.
It takes a village to deliver precision medicine
Nazneen Aziz, Research Professor, Arizona State University and Professor, Department of Child Health, University of Arizona College of Medicine
You probably recall those early days when the human genome project was completed. There was a lot of excitement about personalised medicine but it didn’t really materialise. As a result there was a lot of negative press about not being able to deliver on the promise of precision medicine.Read more on Nazneen’s story
Front Line Genomics delivers on social mission with free to attend Festival of Genomics Boston
(BOSTON, March 7, 2016) Front Line Genomics, the genomic media organization, have today announced that their marquee Festival of Genomics Boston event is now free to attend. The Festival of Genomics serves to celebrate the very best of translational human genomics, to help deliver the benefits of genomics to patients faster. Read more here.